He is beginning to realise that, yes, she is different from other people, and when the friends came over to our house the friends keep asking him, and maybe they did tease him a little bit, you know, knowing children they don't understand. Maybe they did talk about her at school. So right now he hasn't brought friends home for the last 2 years. He is almost 13. And I kept asking him, I say, 'What's wrong? Why don't you bring your friends over and why don't you go out with your friends?' 'Nah, I don't go and see them.' He won't say very much, and when we go walking with our daughter he refuses to join us. He doesn't want to get out of the car to go for a walk with his sister. So I think I can see that he is getting embarrassed and he is beginning to understand that she is very, very different and, ah, he is getting embarrassed. I just hope that [when] he grows older he gets over that feeling."

" I am sure kids at school mention it and make a little bit of fun. It is not intentionally to hurt but you know kids they do say cruel things. So it is hard, you know, on that side. It is really hard."

"It is very, very hard. I used to cry so much, but the only thing that I do now, I say to myself, 'Well now, God, I don't know what to do with myself, ' I say 'Well, regular exercise, ' that is what I do. I go to sleep very early and I get up very early in the morning to take my walk. I just look at the river, I walk along the river and I say to myself, 'How beautiful the world is.'"

" I think our main concern is when we grow older, what is going to happen to the child, who will look after the child. You know because the funding is so bad, accommodation funding is so bad, the waiting list is so long. So I think that is our main concern a lot of parents, as we grow older, our bodies getting tireder, we are getting tireder, our child is growing bigger, the more challenges coming ahead of us, we just don't know what to do as we grow older."

"You know what it is more challenging now that I have to teach her her speech, and some of these independent skills, you know those very main surviving skills, and now even more challenging is now she has left school one and a half years no, and there are two incidences. Once she was struck by someone, a young man, and I called a policeman. And another time she was touched. A young man touched her breast."



6.
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