At that stage both she and I were so depressed. For me, it was like the end of my dreams. I had to somehow work at accepting that I was never going to have a normal child. And for her, despite all that she had done, the medication she was taking, it was getting her from bad to worse.... All the medication they were giving her was having so many side effects....

And her mood swings were so terrible. On the good days it was so hard. On the bad days it was down down down there, right at the bottom.... I told the doctor, "I don't know if you're curing or killing her."

The doctor said she has a very aggressive disease. All this time, my daughter hasn't got much of an education, you know? All the time, the education has been given up with the disease. All the time, the disease has come first, always combating the disease, how to work it so that we can drag the disease back, how to hold it so we can drag her back from being in the wheelchair again....

So, now, coming to this stage, my daughter is not very educated. This is one of my greatest regrets. So, at this stage in her life, she ... hasn't got [many] scholastic achievements.

It has also meant the end of my marriage. If you have other children you need to take time out for them too. Both my sons move out. I am alone looking after her now. The future of my daughter is bleak. Who will take her on?

Ling: "We have to live 'til 150"