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So far you have learnt:

• What self-advocacy is
• Where you can use self-advocacy
• What skills you need to be good at self-advocacy
• What you are already good at when you are speaking up for yourself
• What you need to improve to be better at self-advocacy
• What your rights and responsibilities are as a person with a disability who is from a CaLD background
• How to decide what the problem is
• How to decide how you would like things to change

In this step you will learn the self-advocacy skills of:

How to collect all the information you need
>> (Activity 5.1)

How to come up with solutions that will solve the problem
>> (Activity 5.2)

How to plan the self-advocacy process
>> (Activity 5.3)


The support skills that will help you in this step are:


Communication
>> (Communication activity)

Listening
>> (Listening activity)



Information Gathering: What do I need to know?

Maryam had decided what the problem was, made a list of all the people who could help her, and made a list of solutions to the problem and decided which ones she thought were the best. Angela said it was now time to get information from other people. Angela had already told Maryam about the rules that were made to protect the rights of people with disabilities and from CaLD backgrounds so Maryam knew she had the right to make decisions for herself. Maryam and Angela thought about what information they needed from the bank and wrote down some questions for Maryam to ask. Maryam was nervous about phoning the bank so she and Angela practiced using role play until Maryam felt confident. Because Maryam was nervous and couldn’t write very fast she had a piece of paper next to the phone with a place to write the date, the name of the person she spoke to, what the call was about and what information she was given.

The lady at the bank said they could set up a new account for Maryam which only she had access to or they could have an account that both Maryam and her parents could access. Maryam thanked her then hung up. Maryam and Angela then role played ringing Centrelink until Maryam felt comfortable. Maryam had another piece of paper to write down what the person told her. Centrelink said that the pension being paid to Maryam was for her to use and that there was other money her parents might be able to get if they applied for it, such as the Carer’s Pension. After getting all the information Maryam knew she had the right to the money in her account and her parents could not stop her having it. But Maryam did not want to arrange for everything to change without speaking to her parents because that would make them angry and upset so she decided to speak with them first.

It is important that you collect as much information as you can about your problem. In particular you need to know what your rights and responsibilities are so you know what things are reasonable to ask for and expect. If you do not get the right information you might be asking for something that is not possible and be upset when you can’t get it. When you have the right information you know what to expect and you won’t waste time trying to do something that is not possible.

Part of information gathering is collecting any documentation that supports your case. Depending on what it is you want to speak-up about you might need documents that have your medical, migration or citizenship, financial, education, or residential information on them. It is good to have all the documents you need before you start so you can concentrate on speaking-up for what you want. The more information you have the better prepared you will be.

Activity 5.1: What do I need to know?

After you have decided what the problem is, how you would like things to change, and who to go to for help and information, you need to decide what information you need.

What are my rights in this situation?

-          Are there rights to protect me in this situation?

-          Are my rights being protected?

 

 

 

 

What are my responsibilities in this situation?

-          What do I need to do to make sure my rights are protected?

-          What do I need to do to make the situation better for me?

 

 

 

 

 

Do I need any documentation to support what I am saying?

-          Do I need identification papers?

-          Do I need medical papers?

-          Do I need immigration papers?

-          Is there any other documentation that I may need?

 

 

 

 

 

Are there any policies or procedures that relate to this situation?

-          Is there an existing complaints procedure where I will be speaking up for myself?

-          What is it?

 

 

 

 

 

Do other people have the same or similar problems?

-          Who are they?

-          Are they willing to speak-up about the problem together?

 

 

 

 

When you have decided what information you need to speak-up for yourself, you can think of questions you need to ask the people on your list from Activity 4.2. Sometimes it is hard to remember everything somebody tells you if you are asking a lot of questions so you might like to take notes while you are asking the questions. There is a sheet of paper in Activity 6.2 where you can write your questions and leave a space for you to write notes about the answer. If you think that ringing and asking questions is a bit scary, there are some tips to help you in Activity 5.3 and in the Communication and Listening sections.


Problem Solving: What can I do to change things?

Maryam had decided what her problem was, decided how she would like things to change, and found out information that could help her solve the problem. Now she had to decide HOW she was going to solve the problem of not having access to her money. Maryam had found out from Centrelink that the money was hers to use and the bank had said she could open another account that only she could use which would solve the problem. But Maryam thought her parents might get angry if she did that and she did not want to create another problem. So Maryam and Angela tried to think of other ways the problem could be solved. Angela said it might be easier to solve the problem if they broke it down into smaller parts. One of the reasons Maryam wanted to have access to her money was because she felt she did not have any independence. Maryam and Angela spoke about how they could solve that part of the problem. Maryam thought she should speak to her parents about her feelings rather than shouting and getting angry about not having any money.

The next part of the problem was trying to stop her parents from worrying. Angela suggested that Maryam started by asking for only some of the pension she received each fortnight and that way her parents could see Maryam was using the money responsibly. Maryam also thought it would be a good idea to plan a budget so her parents could see what she planned to spend her money on and open a savings account so she could save a certain amount each week. By breaking the problem down into smaller parts, Maryam was able to come up with some solutions more easily.

It is usually easier to solve problems if you break the whole problem up into small steps and try to solve one step at a time. You may be able to solve some steps by yourself but need help form your support network for others.

There are usually a few different ways to solve a problem. Some solutions you think of might fix the problem now, but make things worse later on. Others might take a long time to fix but work really well in the long term, while some solutions might fix the problem in some situations but not others. You might hear about a way somebody else has solved the same problem but think it might not work for you. You need to think about what might happen for all of your solutions then decide which solution you think is best for you. If it helps, you might like to write a list of all the solutions you can think of starting from the one you like best and going through to the one you like least.

Activity 5.2: What can I do to change things?

After you have gathered all the information you can about your problem, you need to think about what you can do to solve the problem. It is good to think about as many different solutions as you can so you can find the one that would be best for you. You need to remember that YOU might need to change some things as well as other people. Look at the information you have gathered about your problem and try to think of solutions.

It is a good idea to speak to other people because they might think about solutions you haven’t. Get together with your support person (or people) and try to think about as many solutions as you can. Write them all down on a blank sheet of paper as you think about them, even if you don’t really think they will work.

When you can’t think of any more solutions sort the ones you have into three groups. The three groups should be: BEST, OK, and BAD.

BEST

OK

BAD

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


Planning the Self-Advocacy Process: What do I do first?

Maryam had decided what she wanted to speak-up about, had decided how she wanted things to change, had found all the information that could to help her solve the problem, and had come up with a list of possible solutions to the problem. Now she needed to plan how she was going to speak with her parents about having access to the money in her bank account. Angela said Maryam had already thought about why and what she was speaking-up about but it was also important to think about how, where, and when. Because Maryam was speaking-up to her parents for what she wanted, she decided to speak to them at home, it would be silly to ring them on the phone or write a letter! Maryam also decided, after speaking with Angela, that she would speak with her parents when they were not busy so they would all have time to listen to what everyone was saying. Maryam also decided she would ask one of her brothers to be there to help everyone stay calm.

Maryam and Angela then spoke about how Maryam was going to speak-up for herself. Maryam decided to start by explaining to her parents that she felt angry and upset because she didn’t have any independence without her own money. She would then tell them it was her right to have the money and she should get access without them helping but she wanted to do it with them. Maryam would tell her parents how much of the money she would like to be able to spend and show them the budget she had created. When she was planning how to speak with her parents, Maryam practiced her listening skills with Angela so she would remember to listen to what her parents were saying when they were talking.

Maryam role-played the conversation she would have with her parents with Angela until she felt comfortable she was able to do it for real.

When you have decided which solution is best for you, then you need to think about how to achieve that solution. You need to think about whether a letter, phone call, meeting, or government lobbying would be best way.


Activity 5.3: What do I do first?

All the things you have done so far have been helping you plan your self-advocacy so now all you have to do is speak-up for yourself! There are four ways you can speak-up for yourself:

• Informally, like Maryam is doing at home with her parents
• Telephone
• Letter
• Meeting

You just need to decide which is the best way to start speaking-up for yourself, depending on how you like to communicate with people and what you are speaking up about.

After you have decided what the first thing is that you are going to do, it is time to do it! But it can sometimes be scary to speak-up for yourself. You might be worried you will forget what you are saying or that people might have trouble understanding what you are saying because of your disability or that you don’t English very well yet. One of the best ways to become more confident about what you are saying is to practice. You can ask your support person to help you practice what you need to say until you feel comfortable with actually phoning the person or going to the meeting.

Your support person should pretend to be the person you need to talk to. They should talk about the problem with you and some of the things that you think might come up. You should talk about your thoughts and feelings, ask all the questions you need to, write notes, practice communicating and listening well, make sure you relax and stay focused on what you want just like you would need to if you were speaking to a real person. You can keep practicing like this until you feel that you are comfortable doing it for real.


Communication

Maryam wanted to be able to talk with her parents about money but whenever she tried they always ended up fighting. She decided to try one last time. Maryam tried to think clearly about what it was she wanted, and then chose a time when none of them had anything to do and asked to speak with her parents. Maryam told her parents she would like access to the money in her bank account so she could have more independence. Rather than not listening, Maryam’s parents let her give them a few reasons why she thought she should be able to have access to the money. Maryam tried to remember to stay calm while she was talking because it gave her parents a better understanding of what she was saying. When she had finished Maryam gave her parents a chance to speak about how they felt about her having access to her bank account. When they had finished, Maryam asked a few questions to make sure she had understood what they were trying to say. She then asked them if they had any questions they would like to ask her. When they were all sure they understood what each person was saying they tried to come up with a solution they would all be happy with.

Good communication makes people feel comfortable telling another person about their thoughts and feelings AND makes them feel like they are being listened to. Not everyone, though, speaks clearly and shows they are listening in the same way that you do. People from different cultures have different ways of talking about their thoughts and feelings and showing they are listening because they learn to communicate in different ways. There is no right way or wrong way to communicate, just different ways. So you need to be aware that some people might find it difficult to talk about their thoughts and feelings, and some people might seem as though they are not listening. So when you communicate with somebody you need to think about how you like to talk about things and how you show people you are listening to them. You also need to think about how the person you are communicating with might like to do it.

It can sometimes be hard to feel comfortable talking with somebody who does not show they are paying attention and listening the same way as you do. You might feel scared if you try to talk with somebody and they look you straight in the eye and think they are angry at you or not listening to what you are saying. If you feel scared, you probably don’t feel comfortable talking about your thoughts and feelings and so you might not speak-up about what you want.

Speaking up for yourself can be scary, especially the first time you try it, but it helps if you are a good communicator. To be a good communicator and speak-up for yourself and ask for what you want, you need to be good at four things:

• Knowing what you want
• Talking about it or asking for it
• Listening to what the other person has to say
• Making sure you both understand what is being said.

Knowing what you want is the first step to good communication. If you don’t know what it is you want or what it is you are asking for, it can be hard for other people to help because they don’t know what they have to change! Knowing what you want to say is especially important if English is not your first language or if your disability causes you to have trouble talking. If you don’t know what you want to say then it is harder for you to get somebody else to understand. There are activities in Step 4 to help you decide what you want to speak-up about.

Talking to somebody about what you want is the next step for good communication. In Step 4 you learnt how to find the best person to talk to about your problem. Once you have found somebody you feel comfortable talking with and who you think might be able to help you with your problem you need to think about the way you feel most comfortable telling them about your problem. You might talk to them over the telephone, you might write a letter, or you might talk with them in person. It is important you try to choose the method that is most comfortable for you because it will make it easier for you to speak-up. When you are talking to somebody they should pay attention to what you are saying and to how you act when you are saying it. When telling somebody about your thoughts and feelings you should try to stay calm, speak about how you feel and be polite because people are more likely to listen to you if you do. You can learn more about ways to talk to someone in the assertiveness section of the manual.

You have the right to be listened to when you are telling another person about your thoughts and feelings. You also have a responsibility to listen to the other person when they are responding or telling you about their thoughts and feelings. There are many ways to show you are paying attention and are interested in what the other person has to say. You might be more comfortable with some than others so it is important to remember that people show they are listening in different ways. Turn to the section on listening if you need to improve your listening skills.

The final step for good communication is to make sure both people understand what the other is trying to say. This sounds as though it would be easy but it can sometimes be difficult because of the different ways that people have of talking and showing they are listening. The most important thing to do is to respect the other person’s thoughts and feelings and to repeat important parts of what they are saying or ask questions to make sure you understand what has been said.
You can look in the listening section to find some ways to check you have understood correctly.

Communication Activity

Draw a bug (a beetle) that has:
• A long, thin body
• Four legs, two on the left and two on the right
• Two eyes on top of its body
• Two wings, one on the left and one on the right
• Spots on each wing
• Stingers at the bottom of the wings
• A big mouth.


Does your bug look like this one?

Why not? What is different?

Even though both bugs where drawn using the same instructions they probably look very different. That is because everybody is different and they all interpret the things they hear differently. The bugs might look different because of what you thought of in your mind when you heard the word ‘bug’, they might look different because they are different sizes, they might look different because you drew a scary bug and the other was friendly and cute.

The bug drawings show that it can sometimes be difficult to communicate an idea or thought or feeling because the other person might see things differently.
Think about some ways that might have made it easier to draw similar bugs.
Would it have helped if you were given more information? Would it have helped if you were allowed to ask questions?

Good communication is difficult because everybody interprets things differently but it helps if you keep an open mind, ask and give a lot of information and ask questions if you don’t understand something.

Listening


Maryam thought one of the reasons she was always fighting with her parents about money was because they didn’t listen to each other. Maryam just yelled about what she wanted and her parents yelled back about what they wanted. So, after practicing some new listening skills, Maryam decided she would LISTEN to what her parents had to say. When the three of them sat down to talk, Maryam went first and explained why she wanted to have control over her money and the reasons why she thought it was fair. Then she gave her parents a chance to reply. When they did, they talked about being worried that she would fall behind in her studies. Her parents were also worried about the things she would be doing if she had money. They had seen their friend’s children get into financial trouble and wanted to protect their daughter. After listening to her parents Maryam felt she understood where they were coming from. They were unsure of the culture here and felt the only way they could protect her was to keep her in the house where they knew what she was doing. Once she understood the reasons for her parent’s behavior, Maryam was prepared to make a few changes to what she wanted so her parents would not have to worry so much. And her parents understood that she was not disrespecting them, she was just trying to find her independence.

Have you ever thought you heard somebody say something when they actually said something else? That is probably because there is a difference between hearing somebody speak and listening to them. When you LISTEN to somebody speak you HEAR the words they are saying but you also pay attention to the way they say it, how they act, and what you have heard them say before. Listening helps you to UNDERSTAND what the other person is saying because you pay attention to what the other person is thinking, feeling, and wanting. If you do not listen properly mistakes are easy to make because you do not check you have understood what the other person is saying.

It can be difficult for people who are learning a new language to listen properly because they are concentrating on trying to understand what is being said and do not have time to pay attention to anything else. It can also be difficult to pay attention to what a person is thinking and feeling if they have a strong accent or have difficultly speaking because of a disability. Because of these problems, it is important to check that you have correctly understood what the other person is saying when you speak-up for yourself. You can check that you have understood what the other person is saying by asking questions and repeating what you think they are trying to tell you. The other person is then able to correct you if you are wrong and everyone understands what is being discussed. This is called REFLECTIVE LISTENING.

There are four stages of reflective listening. They are:

1. Attention: always pay complete attention to what the other person is saying
2. Silence: people will usually say more if you are silent and let them speak
3. Response: try to show the other person that you are listening to them
4. Reflecting: repeat what you think the person is saying to check you have understood them correctly

Listening Activity

To be a good listener you have to check you have understood the other person correctly by asking questions and repeating what you think they are saying. You might be used to HEARING people rather than LISTENING to them so you may need to practice your listening skills.

You can practice listening properly with your family and friends everyday. When you are talking with them, try to pay attention to what they are saying, and then check that you have understood correctly by asking one of these questions followed by what they are saying:

“So, what you are saying is…”
“You feel angry because…”
“You seem to be worried because …”
“You think it would be good to…”


Where can you find out more information:

• Problem Solving:
101 Creative Problem Solving Techniques, James Higgins

• Communication:
www.premiers.qld.gov.au/apps/assi/communication/

• Listening: ‘Let’s Talk’
www.latrobe.edu.au/education/celia/tesl-ej/ej12/r1.html

 
Acknowledgement Condition of Use Definitions of Terms How to Use the Menual Maryam's Story Understand Self-Advocacy Understand Yourself Understand Your Rights and Responsibilities Understand the Problem Understand How to Prepare for Self-advocacy Understand How to do Self-advocacy Activity 6.1 Activity 6.2 Activity 6.3 Activity 6.4 Stress Management Activity Conflict Prevention Activity Negotiation Activity Conclusion Activity 1.1 Activity 2.1 Activity 2.2 Activity 2.3 Activity 2.4 Activity 2.5 Activity 5.1 Activity 5.2 Activity 5.3 Communication Activity Listening Activity Activity 4.1 Activity 4.2 Activity 4.3 Self Esteem Activity Assertiveness Activity Support Networking Activity